Source: European Parliament
300 million people worldwide live with a rare disease. The rare disease day is the global awareness-raising campaign, taking place on the last day of February each year. The campaign has the goal of increasing equity for people living with a rare disease, improving their lives with equitable access to diagnosis, treatment, care and social opportunity.
SANT Committee has just launched a public consultation on Rare Diseases. We hold it to listen to citizen’s experiences, opinions and suggestions for our policy work. You can give us your opinion on the link below.