Source: European Parliament
1. The definition of health policy and the organisation and delivery of health services and medical care is a Member State competence. EU actions in the field of rare diseases complement national policies and aim to encourage cooperation across Member States. Therefore, the Commission does not plan to adopt any measure to recognise ‘complex therapeutic procedures’ as part of the treatment of rare diseases. However, the European Reference Network (ERN) TransplantChild[1], one of the 24 ERNs funded by the EU, has been working since 2017 on paediatric transplantation, striving to make the latest techniques and medical, pharmacological and therapeutic advances available, while facilitating the dissemination of harmonised clinical practice guidelines and the development of personalised paediatric transplantation medicine.
2. The Commission previously funded a project that supported the mobility of ERN healthcare professionals, allowing them to follow training sessions in specialised ERN centres. Under the current grants for the ERNs (2023-2027), worth EUR 77.4 million (amounting to around EUR 3.25 million per ERN), training and education activities are specifically included, organised and implemented by each ERN, including the ERN TransplantChild.
- [1] https://transplantchild.eu/