MIL-OSI Europe: Answer to a written question – Supporting the development and standardisation of dementia registries across the EU – E-001733/2025(ASW)

1. The Commission is supporting collaborative action between Member States on dementia (JADE Health[1]) with funding of EUR 4.5 million under the EU4Health programme. The focus of the action which started on 1 January 2025 is on prevention, improving the management of dementia, promoting health equity, reducing health inequalities and the improvement of data availability. A stakeholder-led project[2] is supporting the development of innovative practices to tackle dementia and eliminate stigma. This is in the context of the ‘Healthier together’ EU non-communicable diseases (NCDs) initiative[3] which is the strategic framework at the EU level aiming to support Member States in reducing the burden of NCDs.

2. The mission letter to the Commissioner for Health and Animal Welfare[4] tasks the Commissioner to step up the Commission’s work on preventive health and to consider initiatives on degenerative illnesses, such as dementia, to improve knowledge sharing. The ongoing collaborative work under JADE Health will be the basis for the Commission to consider developing a European network of registries.

3. The Commission does not plan to develop a dedicated inequalities registry. The Knowledge Gateway on Health Promotion and Disease Prevention, hosted by the Commission’s Joint Research Centre, provides data on prevalence, information on risk factors and implemented policies and recommendations for NCDs, including on dementia[5].

• [1]  https://jadementia.eu/#:~:text=JADE%20Health%20Joint%20Action%20is%20an%20EU%20initiative,dementia%20through%20prevention%2C%20early%20detection%2C%20and%20person-centered%20care.
• [2]  https://care4elders.eu/.
• [3]  https://health.ec.europa.eu/non-communicable-diseases/healthier-together-eu-non-communicable-diseases-initiative_en#:~:text=The%20European%20Commission%20has%20launched%20in%20December%202021,major%20NCDs%20and%20improve%20citizens%E2%80%99%20health%20and%20well-being.
• [4]  https://commission.europa.eu/document/download/b628b5a2-ac1e-4b9c-bbdd-35b82da0ac6b_en?filename=mission-letter-varhelyi.pdf.
• [5]  https://knowledge4policy.ec.europa.eu/health-promotion-knowledge-gateway/dementia-prevention_en.