Source: European Parliament
Question for written answer E-000537/2025
to the Commission
Rule 144
Margarita de la Pisa Carrión (PfE), Hermann Tertsch (PfE), Mireia Borrás Pabón (PfE), Ondřej Knotek (PfE), Marie-Luce Brasier-Clain (PfE), Emmanouil Fragkos (ECR)
Rare diseases often require complex therapeutic procedures, such as paediatric transplants, which are essential for the treatment of many patients. In 2023 alone, more than 1 500 paediatric transplants were performed in Europe. However, these procedures are not always explicitly recognised as part of the treatment for rare diseases, making it difficult to properly allocate resources and to include them in the European Reference Networks.
Furthermore, the mobility of healthcare professionals is key to ensuring excellence in these procedures. In particular, doctors with years of experience need access to training stays in reference centres in other countries to acquire advanced training and apply best practices in their home countries.
In this context:
- 1.Does the Commission plan to adopt measures to recognise ‘complex therapeutic procedures’ as part of the treatment of rare diseases, ensuring the inclusion of the centres and professionals carrying out these procedures in the European Reference Networks?
- 2.What initiatives will the Commission promote to facilitate the mobility of healthcare professionals, allowing them to train in specialised centres and fostering knowledge exchange in advanced paediatric care?
Submitted: 5.2.2025